NCD Alliance Japan is granted permission to use the word "NCD" by National Clinical Database.
NCDs are defined as chronic diseases, including cancers, diabetes, cardiovascular diseases (CVDs), respiratory diseases, and mental health conditions. NCDs have become the leading cause of death worldwide, and also pose a health issue of great urgency in Japan.
NCD Alliance Japan will continue to expand upon the following activities, aiming to further promote comprehensive, cross-cutting NCD policies as a collaborative platform uniting multi-stakeholders from industry, government, academia, and civil society, including individuals living with and affected by NCDs in Japan.
We spoke to Ms. Yukiko Nishimura, who is active on the global stage in the field of rare and intractable diseases as president of an NPO called Advocacy Service for Rare and Intractable Diseases (ASrid). Ms. Nishimura has a background in chemistry and has served as a technology advisor to the Ministry of Education, Culture, Sports, Science and Technology (MEXT), where she contributed as a specialist in uniting industry and academia and in technology transfer. After spending several years working with the NPO for Promotion of Research on Intellectual Property Toyo (PRIP Tokyo), she established ASrid with the goal of providing services to all stakeholders in the field of rare and intractable diseases.
Mr. Takeda was born with hemophilia and is a victim of what is known as the “HIV-tainted blood scandal,” an incident when some hemophilia patients in Japan were infected with HIV via the administration of unheated blood products. His current efforts began when a support group for people living with NCDs he was a member of invited him to their self-management training program for chronic diseases. Currently, he works energetically to advance the causes of multiple organizations representing and supporting people living with NCDs.
First diagnosed with malignant lymphoma in his 20’s and a survivor of two relapses, we spoke with Mr. Shinsuke Amano, Executive Director of the Japan Federation of Cancer Patient Groups and Group Nexus Japan. Mr. Amano is working to expand initiatives which elevate the patient voice in policy, putting patient group activities into action by representing the patient perspective as a Committee Member and Acting Chairperson of the National Cancer Control Promotion Council within Japan’s Ministry of Health, Labor and Welfare (MHLW).
For this interview, we talked to Mr. Takeshi Shukunobe, President and CEO of PPeCC and Patienthood as well as a person living with an NCD (chronic nephritis). Mr. Shukunobe told us about his activities and shared his future outlook and opinions.